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Link: New clinic software to advance rare disease treatment

Marshfield Clinic has made researching and finding treatments for rare diseases a little easier.

A software program developed at the Marshfield Clinic Research Foundation will be available at no cost to health care institutions and patient advocacy groups to develop rare disease registries to be included in the Global Rare Diseases Patient Registry Data Repository, or GRDR.

The full text of this article can be found at http://www.marshfieldnewsherald.com/. The article refers to a clinic in Marshfield, WI USA.

 

Copyright © News-Herald Media December 6, 2014 | by Marisa Cuellar

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Getting the Best from Your Doctor

This post is featured on the blog “Heart to Heart: Exploring health, wellbeing, chronic conditions & related issues.
I draw on my experiences as a carer, parent, and friend“.

“The relationship between doctors and patients is changing. From being a very unequal relationship, doctors and patients are now trying to make healthcare a more equal partnership. This is particularly important in long term conditions where doctors do not have all of the answers.” Dr. Simon J Ellis, Consultant Neurologist

The full text of this article can be found at http://littlelinden-hrc.blogspot.co.uk/2011/11/getting-best-from-your-doctor.html.

Copyright © 2011 Litl Linden 

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Must they beg for the price of a better life?

This Independent.co.uk article talks about UK Multiple Sclerosis patients fighting to get a costly and controversial drug, Beta-Interferon,  which may hault the progression of the disease.

The full article can be found at http://www.independent.co.uk/life-style/health-and-families/health-news/must-they-beg-for-the-price-of-a-better-life-1569409.html.

 

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.