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Link: Stop with-holding lifesaving IVIG treatment from dying 13 year old Elysha Robertson

Elysha Robertson is a disabled child suffering from a rare condition which results in her being unable to breathe without a ventilator, being unable to eat without a gastonomy tube, being unable to walk or sit upright and is also profoundly deaf and unable to speak communicating via sign language with her feet.

 

UK Residents, please consider reading and signing this petition to give life improving IVIG treatment to the 13 year old girl referenced above. The petition can be found at https://www.change.org/p/nhs-grampian-stop-with-holding-lifesaving-ivig-treatment-from-dying-13-year-old-elysha-robertson.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Hashimoto’s Thyroiditis in Patients with Normal TSH Levels

You can read the full article at MedScape.com. Viewing this article may require a subscription to medscape.com.

 

Copyright © MedScape.com 2014

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Vibrant: Israeli Startup Invents Vibrating Capsule That Frees Up Intestinal Traffic Jams

Uncomfortable cramping and bloating are just some of the symptoms that the millions suffering from constipation, the most common health disorder, experience. In fact over 42 million Americans, one-seventh of the population of the United States, are affected by the symptoms, pain and discomfort associated with constipation, a blocked up reality that can continue for weeks and even years.

 

This full news article can be found at nocamels.com.

 

Copyright © nocamels.com 2014

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Breakthrough hope for MS treatment

Researchers say they have found how to stop cells from attacking healthy body tissue, a breakthrough that holds hope for MS, diabetes and lupus sufferers.

 

The full news article can be found at Nursing Careers Allied Health.

 

Copyright © AAP 2014

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: International Symposium on Autoimmune Encephalitis

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014Florence Forth Road Race

The full news article can be found at https://aealliance.org.

 

Copyright © AE  Allliance | by Will McDow

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: This Is What A Panic Attack Physically Feels Like

For the millions of American adults who suffer from anxiety and panic disorders, panic attacks may be one of the most prevalent and persistent symptoms. And while the experience of a panic attack is different for each individual, there is one universal truth for all who suffer from them: They’re terrifying.

The full text can be found at The Huffington Post.

 

Copyright © 2014 TheHuffingtonPost.com, Inc | By Lindsay Holmes & Alissa Scheller

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: The One New Year’s Resolution Every Person Living With Chronic Illness Should Make

There is a part of us that can’t help but face a new year with dread as we consider the fact we will continue to battle with our illness and the many dramas that ensue as a result. Yet for most of us, when Jan. 1 rolls around we want to believe that this coming year will be better.

The full article can be found at The Huffington Post.

 

Copyright © Copyright ©2015 TheHuffingtonPost.com, Inc | by Lottie V. Ryan 

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Too Rare for Research? People with rare diseases often experience significant delays in diagnosis and access to few, if any, treatment options.

When Jon Soeby snipped his newborn son’s umbilical cord, baby CJ grunted. Astonished, the doctor joked that CJ was already trying to talk. But CJ’s parents felt something was wrong.

The article talks about CJ, a child born with a rare disease called hypothalamic hamartoma. Orphan diseases (affecting less than 200,000 Americans) can and often do experience long delays in diagnosis and treatement of their conditions. Treatment options are often few and far between, if there are any at all. A diagnosis may be years coming, if one comes at all. This is a terrifying reality for thousands of individuals around the world.

The full text can be found at Neurology Now in the April/May 2012 edition.

 

Copyright ©2012 American Academy of Neurology

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: The Joy in Sorrow: There is a certain comfort in finally receiving a diagnosis.

Standing in the small room, we waited for the doctor. I couldn’t tell you how many times we had repeated this scene over the past 16 years, and each time was the same. The doctor would measure our son’s head circumference, check his reflexes and tone, see if he responded to various stimuli, and then ask about his behavior and whether he’d had any seizures lately.

After 16 years of life with a profoundly disabled child and no diagnosis to explain his myriad of symptoms, a mother finally receives a diagnosis. While the circumstances may vary widely for many of us, many people around the world face many years of diagnostic testing without answers. There can be a sense of relief, of comfort, in finally having a diagnosis.

The full text can be found at Neurology Now in the December/January 2014 issue.

 

Copyright © 2014 American Academy of Neurology | Volume 10, Issue 6, pg 78

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: ‘There’s something special about her’: Singer Aliki wows the judges on Britain’s Got Talent just years after losing all speech

Simon Cowell was left in awe following a moving performance from a young woman on Britain’s Got Talent on Saturday evening.

Singer Aliki Chrysochou’s performance of Evanescence Bring Me To Life was not only powerful but poignant due to the fact she lost all co-ordination, speech and movement just a few years ago.

Overcoming the traumatic disease, focal encephalitis, the 29-year-old closed the show with her ‘inspiring’ performance which won her four yeses and a place in the next round.

This Daily Mail article about singer Aliki Chrysochou’s performance on Britain’s Got Talent highlights her recovery from encephalitis.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.