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Link: Clinical Features of Infectious and Autoantibody Encephalitis

COMMENTARY. In this study, using the Granerod classification [2], encephalitis was defined as an acute encephalopathy with >-2 of the following: fever >38 °C, seizures or focal neurologic signs, CSF pleocytosis (>5wbc/uL) or elevated CSF neopterin (>30nmol/L), and EEG slowing or abnormal MRI. Confirmed diagnosis had the organism or autoantibody detected in CSF or brain. A probable diagnosis had serological evidence of acute infection or autoantibody, and a possible diagnosis was based on detection of the organism from stool or nasopharynx. The term infection-associated encephalopathy rather than encephalitis was used for encephalitis related to influenza virus or rotavirus. Encephalopathy is defined as an altered or reduced level of consciousness and change in personality or behavior or confusion lasting >24 hours.

The abstract only is available at http://www.pediatricneurologybriefs.com/article/view/pedneurbriefs-29-4-7/103.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Blog: #ZebraFightTonight against #HashimotosEncephalopathy

On the 26th of April, local Oregon news station, KMTR interviewed husband and wife, Tim and Kelly McCabe. Kelly is battling a rare autoimmune disease known as Hashimoto’s Encephalopathy (also know as Steroid Responsive Autoimmune Encephalopathy Associated with Thyroiditis or SREAT). Recently a member of the online support group, Understanding Hashimoto’s Encephalopathy – A Support Forum, Tabitha Andrews-Orth, met up with Kelly for the first time in person.

These women both have suffered extensively from this form of autoimmune encephalopathy, which has left them with long term neurological deficits and has impacted their quality of life. They are both treated for this rare condition by local neurologist, Dr. Estevez at RiverBend Hospital in Oregon. However, recently these two very ill women have been denied plasmapheresis treatment which was prescribed by Dr. Estevez as the best treatment for their debilitating medical condition. The board of directors at RiverBend Hospital are allegedly keeping these women from receiving treatment which has been scientifically proven to improve patients quality of life.

On the 27th of April, these two women followed by local supporters held a rally to support them in getting the treatment they desperately need. Kelly and Tabitha have compiled over 50 peer reviewed studies which support the use of plasmapheresis in patients diagnosed with Hashimoto’s Encephalopathy to deliver to the board representative. However, upon their previously announced arrival, no one met these women to receive the studies from Kelly and Tabitha. The women were, in full view of cameras and supporters, escorted from the premises by hospital security.

Their courageous battle has now taken to Facebook across three different groups who support patients diagnosed with Hashimoto’s Encephalopathy or other autoimmune encephalopathies, as well as providing information to those who suspect they may have this condition, as well as family, friends, and caregivers. The videos are being shared across the United States, Canada, and the United Kingdom. Furthermore, their fellow support group members are taking to social media, including Twitter and sharing the videos using the hashtags “#ZebraFightTonight” and “#HashimotosEncephalopathy”.

Time will ultimately tell how far this story will reach as those who support these two women continue to share their stories via social media. Dxiled will keep you posted on this story as it develops. For now, you can also follow this story on KMTR Eugene, OR by visiting their website http://www.kmtr.com/news.

The original story by Angelica Carrillo and KMTR staff can be found at http://www.kmtr.com/news/local/Denied-treatment-two-women–301378821.html?tab=video&c=y.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: ‘What can happen if you’re not treated is a coma, or ultimately death’

SPRINGFIELD, Ore. – Two women suffering from a rare autoimmune disease said they were denied treatment at RiverBend Hospital.

The two women suffer from a disease called Hashimoto’s Encephalitis. It’s a disorder that causes inflammation of the brain.

A specialist recommended both patients receive a specific treatment at RiverBend Hospital, but the hospital allegedly denied their request for more treatment.

 

Posted by S.C. on 27th April, 2015.

 

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Video: Shaken With a Smile – A Video Journal of Conversion Disorder and Behcets Disease

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Video: Journal # 9 ByeBye Conversion Disorder, Hello Dystonia? Behcets Disease for Life

A woman talks about her diagnosis of converstion disorder has been replaced with Behcet’s Disease, with unknown possible movement disorders. You can find more of Samantha Blinn’s videos at her youtube.com page.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Mystery illness – ovarian teratoma associated encephalitis

A mysterious and often life threatening disease affects the lives of mostly young women. These patients often end up in psychiatric hospitals misdiagnosed or in intensive care units with bizarre behaviour and metabolic meltdown. It’s been discovered that these patients had a benign tumour in the ovary called teratoma. A teratoma can contain teeth, hair and most significantly for the women suffering from this condition, brain tissue. The body sees this tumour like a foreign type of tissue and mounts an attack, an immune response against these brain cells that are in the tumour. However, the immunological system is tricked and not only goes against the tumour, but is also misdirected against the brain of the patients.

The full audio can be heard at http://mpegmedia.abc.net.au/rn/podcast/2011/06/hrt_20110606_0830.mp3.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Immunologically Mediated Dementias

Although most dementias are due to neurodegenerative or vascular disease, it is important to diagnose immunologically mediated dementias quickly because they can be both rapidly progressive and readily treatable. They usually affect function of limbic and cortical structures, but subcortical involvement can also occur. Because of the variety of symptoms and the rapid course, these dementias present a particular challenge to the clinician and may require evaluation and intervention in the inpatient setting. Diagnostic workup typically reveals evidence of an autoimmune process and, in some cases, cancer. In contrast to the neurodegenerative processes, many of the immunologically mediated dementias respond to immunomodulatory therapy.

The full text can be found at http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2832614/.

Copyright © Current Neurology and Neuroscience | Authors Rosenbloom, Michael H., Sallie Smith, Gulden Akdal, and Michael D. Geschwind

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Dr. Josep Dallmau

Josep Dalmau

Unknown affiliation
Verified email at uphs.upenn.edu
Dr. Dalmau’s current published works can be found at https://scholar.google.co.uk/citations?user=Sr8izWkAAAAJ&hl=en&oi=sra.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: The neurologic significance of celiac disease biomarkers

Objective:

To report neurologic phenotypes and their etiologies determined among 68 patients with either (1) celiac disease (CD) or (2) no CD, but gliadin antibody positivity (2002-2012).

 

The full text could not be found of this article, however the abstract and conclusions can be found at http://www.ncbi.nlm.nih.gov/pubmed/25261501.

© 2014 American Academy of Neurology

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: How IVIG Works

Intravenously administered immunoglobulin (sometimes called IVIG) contain antibodies collected from the plasma of healthy donors.

This useful webpage from http://www.immunedisease.com/ is full of very useful information about IVIG treatment. This treatment is used in many auto-immune diseases, such as Hashimoto’s Encephalopathy.

More information about IVIG can be found at http://www.immunedisease.com/choosing-a-therapy/how-ivig-works/.

 

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.