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Visitor Survey
Visitor Survey
Advocate
- Patient Advocate, Beverly Seminara Help FAQ and advocacy website by Beverly Seminara
Case Studies
- Hashimoto's Encephalopathy – A Complete List of Published Case Studies This page may no longer be updated. Review at your own discretion.
- HE Notebook A research site and blog specifically dedicated to Hashimoto’s Encephalopathy.
- Neurology.org Neurology – The most widely read and highly cited peer-reviewed neurology journal
Hashitmoto's Encephalopathy Support
- Children with hashimoto's Encephalopathy For parents, guardians, care-givers, and children with Hashimoto’s Encephalopathy.
- Children with Hashimoto's Encephalopathy Health/Wellness Website Another H.E./SREAT group geared toward parents, guardians, caregivers, and children with the disease.
- For Those Diagnosed with Hashimotos Encephalopathy / SREAT For those diagnosed with H.E./SREAT.
- Hashimoto's Encephalopathy Group Description – “You can post anything to do with this disorder.”
- HELPS Hashimotos Encephalopathy Group
- supporting those with hashimoto's encephalopathy Community Group Description: “H.E is a disorder NOT a disease! It is not cureable and not many people understand it. We are here for you so don’t suffer in silence.”
- The Understanding Hashimoto's Encephalopathy – Support Forum The support forum associated with the book “Understanding Hashimoto’s Encephalopathy”
Humour
- Laugh Out Lyme “Sometimes laughing is the last thing you want to do when you deal with chronic illness, but once you let out a little giggle and then a couple more, you can’t help but feel uplifted, even if only for a second.” -Mary Sira
Support & Education
- American Brain Foundation
- Aphasia Hope Aphasia is a speech/language disorder that impairs a person’s ability to communicate. It is most commonly the result of a stroke but can occur from any severe head injury.
- Auto-Immune Encephalitis Alliance Promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.
- Autoimmune Walk Walks to raise money for auto-immune disease awareness
- Care to the People Care To The People™ is a for-purpose, social media health initiative that’s making the web a better place for anyone coping with a health issue, their loved ones, and patients seeking advice, inspiration, and encouragement from others.
- Encephalitis Society
- HESA Hashimoto’s Encephalopathy SREAT Alliance
- HESA – Hashimoto's Encephalopathy SREAT Alliance Non-Profit Organization Information about H.E./SREAT and resources.
- IG Living Our mission is to support the IG community through education, communication and advocacy.
- Invisible Illness Week September 28th – October 4th Invisible Illness Awareness Week
- Mark2Cure Project Push research forward and discover cures faster.
- Neurology Now Neurological jounal
- Rare Disease Day Rare Disease Day
confussion
Link: Voltage-gated Potassium Channel-complex Antibody-associated Limbic Encephalitis
This article discusses antibodies which target the voltage-gated potassium channel complex in the brain. This auto-immune condition effects twice as many men as women, unlike many other auto-immune diseases. It can present with forgetfulness, drowsiness, mood disorders, and generalised or faciobrachial seizures.
The article can be found at http://www.encephalitis.info/information/types-of-encephalitis/types-of-autoimmune-encephalitis/voltage-gated-potassium-channel-complex-antibody-associated-limbic-encephalitis/.
The full text of this article is found at Encephalitis.info and was published in 2014. Copyright © 2014 By Dr Thomas Miller,Clinical Research Fellow, University of Oxford, John Radcliffe Hospital, Oxford
Is the copyright information correct? Is there a tag missing? Please comment below.
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