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T.A.O.

Link: Can you Walk and Chew Gum at the Same Time?

Ever heard the expression « bet you can’t walk and chew gum at the same time? » I am not sure I really appreciated the full extent of its meaning until just last week.

At the 3rd International Congress on Gait and Mental Function in Washington DC in February, a series of new research studies were unveiled. One such study, described by Prof. Jeffrey M. Hausdorff , Director of Tel-Aviv Sourasky Medical Center, was on the topic of dual-tasking while waking. That is, walking and doing one other thing at the same time – like talking, observing the trees and flowers or other tasks that require a little attention.

Posted on by T.A.O. on 30th August 2014 to the tread https://www.facebook.com/groups/251477975360/permalink/10154491879730361/.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Blog: #ZebraFightTonight against #HashimotosEncephalopathy

On the 26th of April, local Oregon news station, KMTR interviewed husband and wife, Tim and Kelly McCabe. Kelly is battling a rare autoimmune disease known as Hashimoto’s Encephalopathy (also know as Steroid Responsive Autoimmune Encephalopathy Associated with Thyroiditis or SREAT). Recently a member of the online support group, Understanding Hashimoto’s Encephalopathy – A Support Forum, Tabitha Andrews-Orth, met up with Kelly for the first time in person.

These women both have suffered extensively from this form of autoimmune encephalopathy, which has left them with long term neurological deficits and has impacted their quality of life. They are both treated for this rare condition by local neurologist, Dr. Estevez at RiverBend Hospital in Oregon. However, recently these two very ill women have been denied plasmapheresis treatment which was prescribed by Dr. Estevez as the best treatment for their debilitating medical condition. The board of directors at RiverBend Hospital are allegedly keeping these women from receiving treatment which has been scientifically proven to improve patients quality of life.

On the 27th of April, these two women followed by local supporters held a rally to support them in getting the treatment they desperately need. Kelly and Tabitha have compiled over 50 peer reviewed studies which support the use of plasmapheresis in patients diagnosed with Hashimoto’s Encephalopathy to deliver to the board representative. However, upon their previously announced arrival, no one met these women to receive the studies from Kelly and Tabitha. The women were, in full view of cameras and supporters, escorted from the premises by hospital security.

Their courageous battle has now taken to Facebook across three different groups who support patients diagnosed with Hashimoto’s Encephalopathy or other autoimmune encephalopathies, as well as providing information to those who suspect they may have this condition, as well as family, friends, and caregivers. The videos are being shared across the United States, Canada, and the United Kingdom. Furthermore, their fellow support group members are taking to social media, including Twitter and sharing the videos using the hashtags “#ZebraFightTonight” and “#HashimotosEncephalopathy”.

Time will ultimately tell how far this story will reach as those who support these two women continue to share their stories via social media. Dxiled will keep you posted on this story as it develops. For now, you can also follow this story on KMTR Eugene, OR by visiting their website http://www.kmtr.com/news.

The original story by Angelica Carrillo and KMTR staff can be found at http://www.kmtr.com/news/local/Denied-treatment-two-women–301378821.html?tab=video&c=y.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Does EEG pick up brain stem activity?

In breif: No.

This page briefly asks the  question if brain stem activity is picked up on EEG. Answered by Dr. Adam Smith. The full answer can be found at https://www.healthtap.com/user_questions/1036730-does-and-eeg-pick-up-brain-stem-neuron-activity.

Posted on 18th April, 2015 by T.A.O. to comments.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Video: CSF presents “PANDAS, Paraneoplastic Limbic Encephalitis & Other Autoimmune Syndromes”

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Video: Our Immune System – Pfizer – Cortical Studios / Glow Studio

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

IVIG (Side Effects)

IVIG Side Effects

The majority of intravenous immunoglobulin (IVIG) side effects are mild, transient, and self-limited and do not require discontinuation of therapy.

 

The full list of side effects can be found at http://www.immunedisease.com/choosing-a-therapy/how-ivig-works/ivig-side-effects.html. This link was posted to comments on 18th April 2015 by T.A.O.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Autoimmune Encephalitis: Case Panel Discussion

The full video can be found on Vimeo.com on the AE Alliance video page. The link was posted to comments by T.A.O. on 4th April, 2015.

 

ae_alliance

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Medical Alert Wristband

NON-ALLERGENIC, SILICONE MEDICAL ALERT WRISTBANDS
We are proud to announce our 100% silicone, non-allergenic medical alert wristbands. These wristbands have a colored, sunken area to be engraved with up to 80 characters of medical alert or emergency contact information. Priced at only $14.95 each including personalization, these are the lowest priced Medical ID Bracelets on the market today! They are extremely strong and will last for years to come. Unlike our Strong ID emergency wristbands which are not designed for daily wear, our new Medical Alert wristbands can be worn 24/7! We hope you like the new design and that you will tell your friends too!

– See more at: http://www.wristbandconnection.com/medical-alert.php#sthash.VBzzlbT9.dpuf

The website and information about medical alert wrist bands can be found at http://www.wristbandconnection.com/medical-alert.php. This link was posted on 18th April, 2015 by T.A.O.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: Hashimoto’s encephalopathy by Joana Ramalho, MD, and Mauricio Castillo, MD

This link posted by T.A.O. talks about Hashimoto’s Encephalopathy.

Abstract

We report a case of Hashimoto’s encephalopathy with atypical and partially reversible MRI findings. T2-weighted MRI images revealed bilaterally symmetric areas of increased signal in the mesial temporal lobes and basal ganglia. Despite clinical and imaging improvement after steroid therapy, some memory deficits and MRI abnormalities persisted.

The full study can be found at http://radiology.casereports.net/index.php/rcr/article/viewArticle/445/793.

Copyright: © 2011 The Authors | Joana Ramalho, MD, and Mauricio Castillo, MD

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Link: The Diagnosis of Autoimmune Encephalopathies, Dementias, and Epilepsies

Many disorders of the central nervous system (CNS) previously considered neurodegenerative and untreatable are now recognized as having an autoimmune cause.1,2 Autoimmune disorders of the CNS may be paraneoplastic (occurring in the setting of an occult systemic cancer) or idiopathic. Improved recognition of these disorders has been facilitated by an expanding profile of neural-specific autoantibodies discovered and validated for clinical use in academic neuroimmunology laboratories. When detected in serum or cerebrospinal fluid (CSF), these immunoglobulin G (IgG) biomarkers reliably predict an autoimmune cause for neurological dysfunction in patients presenting with rapidly progressive brain disorders. New testing profiles relevant to the evaluation of 3 neurological disease states (autoimmune encephalopathy, dementia, and epilepsy) are now available from the Neuroimmunology Laboratory at Mayo Clinic, Rochester, Minnesota. Testing profiles, available for both serum and CSF, include neural antibodies that have been clinically validated as biomarkers of these 3 disorders. (Table 1) Negative results for these antibodies do not exclude an autoimmune basis for encephalopathy, dementia, or epilepsy, so in seronegative cases, a diagnostic trial of immunotherapy should be considered.

This The full comunique can be found at http://www.mayomedicallaboratories.com/articles/communique/2014/07-autoimmune-encephalopathy/index.html. This link was posted on 3rd December, 2014 by T.A.O.

Copyright © 1995– 2015 Mayo Foundation For Medical Education And Research

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.