Tag: research

  • The importance of patient advocacy to clinical research

    The importance of patient advocacy to clinical research

    Audio file  Transcript  Hi, my name is Kimberly Thomas-Tague and I am the founder of #Dazzle4Rare and host of the Signalise podcast.   I’ve got a metaphor for you.   You’ve been asked to plan a party for a group of people. Your partner sent out an invitation that says the party will be inclusive,…

A Symplur screenshot showing 2021 hashtag Twitter social media impressions for the event week.

Timeline Impressions

2021

Twitter Timeline Impressions

2022

A screenshot of Dazzle4Rare 2022 Twitter impressions courtesy of Simplur, the healthcare hashtag tracker. The image shows "The numbers" 9.477 million impressions, 3,979 tweets, 239 particpants, 21 average tweets per hour, and 17 average tweets per participant.
Dazzle4Rare text-only logo on white background. It reads, "Dazzle4Rare We are Rare Family dazzle4rare.net"

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Black text on white background. Signalise text-only logo reads, "Signalise a dazzle4rare podcast"