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Visitor Survey

Visitor Survey

site updates

Tuesday June 23rd, 2015

The website has been down several days. I have noticed a huge influx of “D.O.S” attacks to the site and therefore took it down and blocked access to files. This seems to have been effective in the last 24 hours to prevent further attacks. There have also been some hacking attempts. Several of the video file pages were hit in a suspicious manner as well around this time.

I plan to continue to plumb the internet for useful studies, articles, videos, and content that is relevant to patients with Hashimoto’s Encephalopathy, Autoimmune Encephalopathy, as well as many conditions that can be seen as comorbid or occur along with autoimmunity. I hope this broad spectrum of information is helpful to folks, not only with HE/AE but with other autoimmune conditions as well as other conditions across the realm of modern medicine. As far other portions of the site, those may change. Please “watch this space”.

Thank you to everyone who visits the site. We hope you find it useful in your journey to understanding and making more informed health care choices with the input of your clinician and/or medical team.

Just a reminder, nothing on this website is offered as advice in place of your own clinician’s training and expertise. Please keep that in mind not only while viewing the contents linked to from this site but also other sites who are not monitored by physicians and especially by those who are not familiar with your particular medical case.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.

Sunday May 31st, 2015

I’m still trying to get caught up to more recent links posted to Hashimoto’s Encephalopathy (HE) / Autoimmune Encephalopathy (AE) (the name recently changed again), Understanding Hashimoto’s Encephalopathy – A Support Forum, and Autoimmune Encephalitis (All types including Hashimoto’s Encephalopathy) as time permits. As I said in a previous update, I’ve been working on another project that has been very time consuming. It is a rewarding task, however, and I think it will be useful to those in the “HE/SREAT” and “AE” communities.

As I said in a previous update, I am tagging each link/post from the above groups with the initials of the person who posted it and a permalink to the Facebook post. The reason for this is so that members of the “HE Groups” can easily find links by a certain poster’s initials or refer back to the original post on Facebook if they are a member of that group. I’m hoping this will make finding information easier for group members as well all have moments like “I remember so-and-so posted about such-and-such but I can’t remember the name of the study/article.” It an also be helpful if you remember there was a comment on that thread to something you wanted to find but can’t find the thread itself. Hopefully this helps people keep track of studies and information they find useful without having to remember which group it was posted. Since the groups sometimes change names or information gets moved around or edited, this information remains the same regardless.

Remember, you can only see the original Facebook post if you are a member of that group. If you are not, you will see the groups main page and have the option of joining if you wish. All these sites are closed and require admin approval before joining.

In other news, I have been seeing a slow increase in website hits as well as new members both in the “HE Group” category and “Free” memberships. Thank you to those of you who use the site. We’d love to hear your feedback. Please feel free to get in touch with us on the website or by leaving a comment below. We have a site visitor survey on the front page as well,  so please feel free to use it!

At this time, dxiled itself is not on social media as I am working through social media for others at this time and don’t have time to catch up my own personal social media sites. Someday, if ever I have the time, I may get dxiled on Twitter. We shall see.

Thank you again to those who find this site to be a resource. Hoping that you find the information you’re looking for and that the information you find helps you make informed choices, obtain better medical care, and experience a better outcome as an informed patient.

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles, personal accounts, or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professionals advice.